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On behalf of founding members, We are glad to give you our Wellcome in this website.
You will found scientific material and testimonials of people and families involved, and not, by this Syndrome.
The scope of this website is to highlight and inform about the presence of this rare illnes of which many doctors do not know its presence
We hope you can find what you need, otherwise do not hesitate to contact us.
Mario de Leva - 07 giugno 2009
First Step
On May 30 the Italian Association Syndrome EEC (AIEEC) was founded. The Associasion born as Telethon Association 's friend, thanks to their support and encouragement we were able to put the basis for the birth of AIEEC
Incontro soci fondatori con Theleton